My stepson, Marcus died last Friday, thankfully in his sleep. I was never that close to Marcus. I married into the family. I know that's no excuse, but it is what is. I think to him, I was the Boogie Man. It was always a battle to get him to use his sippy cup and get enough fluids into him. Whenever I asked him to drink he always drank. He sometimes ignored other family members, but he always drank for me. I'm sure to him I was an unknown quantity, and looked at me with a jaundiced eye. You see Marcus had a severe disability, both cognitively and physically. He was born with a thoracic neural tube defect- spinabifida needing 24 hr care. He was wheelchair bound, his verbal responses were monosyllabic, but knew more than his verbal responses would indicate. Perhaps, he was a person limited by his body to physically respond. A person trapped inside his unwilling body.
A very moving tribute. You should take comfort in knowing that Marcus, like all of us, had a finite life’s trajectory. Please don’t allow your guilt to supersede the great care and love you showed him.
A very moving tribute. You should take comfort in knowing that Marcus, like all of us, had a finite life’s trajectory. Please don’t allow your guilt to supersede the great care and love you showed him.
Thanks Cus for you and Pam's kind words. They mean alot to me
Beautiful, heart felt words. Prayers for you, Tracey and family❤️